Tinnitus Neuromodulator

A message of hope.

I got mine in my 30's too. The first week I thought I was going crazy, and this was the end of my life. I was shocked, I couldn't go to work for a whole week.

I then saw a doctor who said to me: "Man, I've got tinnitus since 20 years and I barely hear it anymore. The more you accept it, the more it'll fade."

A decade later, my own experience is exactly this. I accepted it as one of the body malfunctions that comes with age for everybody. I barely hear it anymore except in extremely low noise situations and it doesn't bother me at all.

I wish you well.

Once the major (though exceedingly rare) problems have been ruled out, the best course of action is to start learning to live with it.

It’s not what anyone wants to hear, but it’s the pragmatic approach that works best from everything I’ve seen.

The people who become involved in tinnitus forums, support groups, and chasing experimental treatments think they’re helping themselves but they’re really only bringing it to top of mind over and over again.

It feels frustrating to give up and disconnect from all things tinnitus related on th internet, but disconnecting is exactly what helps with the process of letting it fall into the background of your life. Constantly bringing it to the foreground and reading about it only makes it worse.

I started having tinnitus in both ears 10 months ago.

I don't know the exact cause, but I started noticing it during a job-related burnout and a series of work-related events that significantly increased my stress levels.

It was so bad to the point I had to abruptly quit my job (FYI, freelancing without a safety net sucks).

My doctor gave me pills to help calm my brain and the noise, especially during the night. I also have hypersensitivity, so having a constant noise ringing was not ideal :/

Luckily my ENT doctor recommended that I do multiple things at the same time:

    - tinnitus retraining therapy (TRT), listening to white noise ~4 hours a day
    - going to a therapist
    - daily meditation
    - daily exercise
    - reducing salt, chocolate, coffee, etc.

I started to see life a bit differently since then. Things that disrupt your life can happen so suddenly...

I'm still trying to find a job, but I lost a lot of confidence and developed a bit of a trauma since I don't want to experience burnout again :/

I have had tinnitus in my left ear since 2011. You do get used to it. I really only notice when someone says the word or an article on it pops up. I considered setting up some kind of web filter just so I never saw the word again. I notice it now, for instance.

To everyone who doesn't have it, wear ear plugs at concerts, be careful when you remove the ear plugs, and use the max volume limiters on your phones. Enjoy your hearing while you have it.

I got tinnitus in one ear after using music in headphones to block out other noise. I was probably using the headphones too loud and too often. This happened 15 years ago. It was pretty bad at first. Since then, very slowly, it has mostly "healed" or something. It's still there. But it's much less severe than it was.

I also experienced significant hearing loss around the same time. My hearing had always been absurdly good, but that changed over about a year. Now I can hear well enough to get by, but I really miss what I had. Protect your hearing!

If it helps: I've gone through years of coping strategies and coming to peace with it; it'll probably annoy you a lot less a year from now than it does today. (I had a really rough run in my teenage years, but these days a cure for tinnitus is kind of only academically interesting to me; I mean, I'd do it, but it probably wouldn't change my life much.)

I’m basically in the same exact situation as you, only ringing in my left ear. MRI/hearing/etc tests have all shown nothing and I haven’t received any answer for it. I’ve had it for close to a decade now. NYC definitely helps drown it out but life would be better without it.

Another message of hope for anyone struggling with the possibility of having tinnitus:

I may not be able to fully recount all the factors but I believe my ears may have had some residual fluid after recovering from covid (my covid symptoms were entirely unpleasant and impacted me differently in many ways). Before my ears cleared up, I took a domestic flight where I actually got vertigo for a few 10s of seconds on ascent. My ENT believes my eardrum expanded to touch the inner ear.

The following day I went to a gun range and did skeet shooting for a couple of hours then shot really big guns and sniper rifles. The earplugs I brought myself were likely not adequate and taking them out and putting them in repeatedly in relatively cool weather likely didn't provide the best seal either.

That night or the next day I noticed lots of ringing in my ears and I started to become worried when it was still there even after a week. The worst was being in silent meeting rooms at work where it was most noticeable. It was extremely depressing and I nearly lost all hope.

I visited 2 separate ENTs and each just sent me re-take my yearly hearing test. They didn't really provide any comforting words other than to take the test and wear hearing protection, etc..

Before the hearing test (~2 weeks after the gun range and flights) I explained everything to the audiologist and he said "Lots of people have various degrees of tinnitus/ringing, just don't think about it. I have it and that's what I do. Don't let it bother you and live your life."

Interestingly enough, my audio test came back better than the previous 10 year results and since then I just don't think about it. If I do I can certainly hear it. My only personal takeaway is that the brain and body are very complex and have an arsenal of mechanisms to deal with trauma and that for this particular instance I've been very lucky.

Similar story here. I hear something like CRT whine all the time (except higher than the typical 15Khz NTSC tube whine). When I was a kid I played with the SOUND statement in GW-BASIC and figured out my tinnitus s was between 17 and 18 Khz (listening for bleating interference between my laptop speaker and the tinnitus). Today my hearing tops out between 12 and 13 Khz but I assume the tinnitus whine is still the same old frequency.

My daughter has it, too. My wife doesn't, but my daughter has described it to me.

I haven't felt negative about it except for the time I visited an anechoic chamber exhibit at a local museum (COSI in Columbus, OH) in my early 40s. It really messed with my perception and the tinnitus was much louder than normal for days after. Even thinking about it make me edgy.

Same here. A few years ago I thought maybe the ringing isn't normal. It hadn't occurred to me before that.

I found a YouTube video of a "tinnitus demo" with the right sound and frequency. I could only start hearing it at about 80% volume. I gave my headphones to my partner and she said it was unbearable. I guess I'm used to my normal.

I slightly regret knowing about it, I seem to be paying more attention to it now.

I think that's most people. I never even knew that I had tinnitus (still don't know if I do frankly) because if you've put me in a dead silent room I've always heard some very low kind of 'static' for a lack of a better term. Most people I've ever talked to say the same thing, very few people have ever told me they hear absolutely nothing. Only after I kept reading about it did I start to notice it more, I think there's a really big psychological element to it.

Same, for going on 40 years now. I can sleep without some kind of white noise, but it's really challenging. I have one of those Dohm thingies, which has been relegated to my office; in our bedroom we've got an air purifier and I have a tiny desk fan on my nightstand.

I've found that stuff like this site and therapy approaches like it tend to make me hypervigilant about my tinnitus, which is exactly the opposite of what I want. My tinnitus is moderate-severity (it's loud but never competes with real sound) and just by keeping background noise around I'm at a point where I think about it maybe a couple times a week tops; most of the times I'm persistantly thinking about it, it turns out I have a sinus infection or something.

While I can normally tune out my Tinnitus, i also love the constant city noise and in my office I have a collection of solar toys that keep clicking randomly, which help me focus. Actually I tried the OP site and trying to tune the thing actually made my Tinnitus pretty unbearable ATM. I guess the trick is to use it without trying to directly hear the effect...

Have you tried the Dohm mechanical noise machines? The original white noise machine AFAIK. Might be a little more power efficient while still making sound by moving air rather than a speaker.

Look up "pink noise".

What type of fan is best for this? Box fans or the round powerful ones?

Can you please tell what kind of therapy you did ?

Ear tube surgery?

Absolutely. I have a person favorite setup... which is to have these two playing at the * same time * and play around with the combos of sliders / set to automate.

Pair: https://mynoise.net/NoiseMachines/numberStationsRadioNoiseGe... with: https://mynoise.net/NoiseMachines/magicDuneArrakisGenerator....

I set the numbers stations to 'narrow' and Arrakis to 'wide' and stereo field, mute the numbers stations that repeats german numbers (those stand out to me too easily)... and it's like some magical productivity hack of my brain.

Many of my biggest professional achievements were enabled via Irish Coast. I give them a few dollars a month.https://mynoise.net/NoiseMachines/windSeaRainNoiseGenerator....

> It was causing a lot of anxiety because I was afraid of how much louder it may become.

Been there. After a few years of slow increase, mine suddenly cranked up to 11 (due to an infection, it turned out). There were a few rough weeks while I worked out counter & coping measures. I still need those measures from time to time.

    measures:beltone app & speakers at the head of my bed. 
    A half doz (non-controlled) insomnia meds to rotate thru.
    I discovered UK Great Railway Journeys vids; 
       they interfered with distress feedback loops

I can relate.

I had tinnitus for over 10 years. My tinnitus was not the usual ringing type, it was some sort of humming, low frequency noise. The frequency was not constant, it could vary. It could sometimes stop for 5-10 minutes, e.g. after a hot bath.

Went to see many specialists, tried everything, to no avail.

One day I started experiencing recurrent tension and light pain in my neck and shoulder blades, so I started doing some neck and shoulder blades stretches several times a day.

After a few weeks, the pain was gone, and I realised the tinnitus had stopped. This was maybe 2 years ago (I am still doing those exercises multiple times a day).

Is there any evidence that those things actually work? I haven't done a lot of research on it, but I asked my ENT about it and she said that they don't have a great success rate and they're pretty expensive so I don't want to pay for it.

Maybe I could apply for a clinical trial.

I had great success with Lenire, at the end of the six month (twice a day, 30 minutes) treatment the intensity of my tinnitus had definitely decreased, but almost more importantly I'd been reconditioned not to focus on it as much.