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The year I didn't survive

The year I didn't survive

33 comments

·February 12, 2025

CobaltFire

My son had cancer during COVID, though he was fortunate enough to beat it into remission (with the help of a huge care team).

I was active duty military, and he is also non-verbal and autistic.

The things she talks about, how focused she was and how hard it is to do any of that now, I've been experiencing exactly the same things. I find it hard to do anything, put anything together, etc. after 3 years of managing his care closely, being at his bedside all hours, having to scream at nurses to call away a code because he couldn't breathe (anaphylaxis), and a ton of other things. All of this while working 50+ hours a week, including remotely from his bedside.

It's like I burnt out that part of me. Maybe I'm slowly healing? But I don't feel like it. I get minutes or hours when I can hit that stride again and it's absolutely terrifying to realize that I can no longer keep it up.

I don't know that this comment adds anything to her story. I just felt like I understood her on a level that's hard to communicate and had the urge to share that.

irjustin

I know nothing of the difficulties you nor the OP face, but

> It's like I burnt out that part of me. Maybe I'm slowly healing? But I don't feel like it.

You've probably heard it, but maybe to help remind, I just wanted to say - It's okay to be burnt out and do little or nothing. I believe it's the minimum requirement to healing and it _will_ take years maybe even a decade. I was cheated on and that affected me for 2 years and that's trivial to the road you walk.

CobaltFire

I was fortunate enough to be in a place where I could "retire" the month after he rang the bell.

I've been doing my own thing for close to two years now, trying to heal.

Maybe I will someday. Until then, I somehow manage to keep up with his (still elevated) needs and try to be a good husband and father to my other child.

justforaoneoff

COVID coincided with my daughter being born, my parents dying unexpectedly and my partner having complete mental breakdown all while I was working a very stressful job with long hours and high stakes. Years have passed and I still feel like the battered husk of the person I was. I have good days and bad days but I'm slowly coming to accept I won't ever feel the confidence, the capability or the boundless reserves of energy, love and patience I took for granted again.

Which is all to say, I hear you.

throwcatowayne

Jeez, this resonates with me so much. In 2019 I was constantly on the upswing. But in 2020, it's been an intensely downward spiral since. I was under so much stress from a 60hr/wk job, isolated during covid with a partner who turned physically abusive and having constant mental breakdowns, on top of trying to endure it all for a once in a lifetime housing opportunity, and then both of my parents ended up hospitalized in the ER from covid... I remember feeling at the time that my mental gears were breaking and doing permanent damage. Those 6 months felt like such a short time that fundamentally changed me from a cheery person to permanently somber.

I quit my job in 2021, physically incapable of continuing and wanting to end it all, thinking if I just make it through each month it'll eventually get better and it never has. It only got worse like the universe kept ratcheting up the difficulty. My abusive partner only got more abusive as I didn't have a job (but paid all our bills) and couldn't muster any energy towards relationship milestones as the abuse and depression crippled me. Years of enduring this only led to now being abandoned and feeling worse than ever, like there is no upside worth the calamitous downsides in life.

rpjt

That sounds really rough. Here if you ever want to talk about it. Sorry.

dwaltrip

I've had some rough years recently as well.

I'm slowly healing and learning how to live a new life. A life that I like. But it's been really fucking hard. This wasn't in the manual.

I hear you both (and anyone lurking :). Much love to you all.

yard2010

I think it's obvious. Everyone should treat anyone with empathy respect patience understanding and love. Most of all love.

That level of understanding between you and her should be universally shared between everything that is living. This way, support can always be found.

I wish you and your family all the best. The same goes for Bess, as I told her many times. I wish I could give you a hug, make you feel protected and capable, as the hero that you are.

tombert

It's weird how a series of big things happening in a short period of time changes who you are as a person, and not always for the better.

When I failed to stop an acquaintance from killing himself a few years ago [1], it really fucked me up. I barely knew the guy, but I couldn't stop myself from feeling guilty over it, and I still have nightmares about it.

It led to a severe funk of depression that I still haven't gotten over, and it's led to poor sleep, poor performance at work, an increased irritability towards pretty much everyone, and I'm not completely convinced that that will ever stop.

I've seen therapists, taken various medications for depression and PTSD, trauma dumped onto pretty much anyone who will listen, and I think I'm a worse person now than I was in 2021.

I guess the likelihood of an event like this happening approaches 1 as you get older, but it doesn't mean it's not terrible.

[1] Written in some detail here https://news.ycombinator.com/item?id=29185822

danparsonson

I was reflecting just yesterday how, as we get older, gradually more and more of those who have been part of our sphere for significant portions of our lives (whether direct acquaintances, or just people who we know because of their public actions) begin to leave us, and how everyone who passes, whoever they are and however well we knew them, leaves a space that can't be filled.

I'm truly sorry for all that you've been through and I hope you find comfort. Reading through your other post it seems likely to me that nothing you said or did could have made any difference.

tombert

> I'm truly sorry for all that you've been through and I hope you find comfort. Reading through your other post it seems likely to me that nothing you said or did could have made any difference.

Yeah I know, that's not really why I feel guilty, at least not exactly. I feel guilty because I noticed signs of someone who was suicidal, and explicitly chose to not do anything. Even if nothing would have changed, I still think I should have tried to do something, even if it was futile.

It feels like the universe was giving me a character test, and it feels like I failed it. I would like to think that when push comes to shove, I'd do the right thing, at least in regards to someone's life being on the line, but I guess at some fundamental level that's simply not true, or at least it wasn't in 2021.

I mean, I realize that no good comes from feeling bad about myself over it, certainly not for three years, but human psychology is pretty annoying sometimes.

beachtaxidriver

I read your original post and almost every reasonable person would have paused, but then have written it off as dark humor by someone they didn't know that well.

The only reason you might think there were "signs" you should have caught now is because of what happened but no one could have known in advance.

From a total Internet stranger, give yourself some grace. Or what I have also heard: Judge yourself the way you would judge a good friend in the same situation. We often judge ourselves super harshly!!

fragmede

Put it this way: the next time life puts a similar decision before you, would you still "fail"? If you believe in life teaching you lessons, one way to frame it is to look past how you feel and look at the actions/decisions concerning other people you've made since then. Are they the same decisions/actions you would have made before? Or did that one particular interaction manage to change your behavior?

Trasmatta

Guilt and shame are two of the most complex and difficult to grapple with human emotions. You definitely didn't do anything wrong, but some people's brains will latch onto guilt like a vice regardless. And it can happen regardless of the rational part of the brain knowing that you didn't do anything wrong.

I have the same type of problem. The one thing that's finally helped a little bit is allowing myself to feel the guilt (and all the emotions surrounding it) fully. Normally I try to push it down (because I don't actually have anything to feel guilty for), but suppressed emotions continue to live forever, and they will surface in your body and mind in many ways. Allowing myself to feel it gives me room to process the emotion finally.

Easier said than done, of course. You can't just turn the emotions on and off like a light switch, especially because the brain forms protective mechanisms to prevent you from feeling it. I've had some luck with IFS and somatic therapies.

bamboozled

For what it's worth, don't do this, you also know you need to give people space and in hindsight, because of what happened, you only now think should've done something but I'm sure there were wholesome reasons why you avoided intervening in the first place.

Just as easily they didn't make the attempt and you would've thought you made the right call.

It's not on you.

schneems

I’m sorry you went though that.

I had a friend die by suicide. Shortly after I met him for the first time IRL. It messed me up.

I’m sure you’ve heard it before but for the gallery, there’s the “in the moment” suicides where the thought comes and people act on it. If anyone feels that way, please call a hotline, it really is just a temporary feeling that will pass. Then there’s the “sick for a long time.” My therapist described this group as having an unhealthy brain. They’re taking in inputs like normal, but producing harmful urges. That sickness isn’t a thing others can counter or take on for themselves. There’s professional help if you (the reader) are feeling like this constantly. But like all sicknesses sometimes even the best treatments aren’t enough. (Therefore we should not blame ourselves for what we could have done differently).

Knowing that still doesn’t make it better, but it makes it lighter. For me, anyway.

raddan

I’m sorry to hear that. And you’re right, the likelihood approaches 1 as we get older. And that’s if we’re lucky!

Don’t be too hard on yourself. Those who have experienced loss understand that sometimes we have to step back from things, life, our careers. It’s ok to do it. It’s your life, and the one of the greatest joys of life is: you get to choose how to live it.

I hope you bounce back. But take your time.

wonger_

Very sad. In case you didn't open the link yet, this is from the widow of Jake Seliger, who was very active on HN: https://news.ycombinator.com/threads?id=jseliger. He died a few months ago.

Grieving while being a new mom must be brutal.

LorenDB

Checked his profile. His last comment was an archive.ph link to bypass a paywall. If that's not a great HN legacy, I don't know what is.

DC-3

It was on the day he died, too.

LorenzoGood

I noticed the same. What a guy.

dcchambers

Beautifully written but...heartbreaking. Hard to get through this one.

In a few years I probably won't be able to. I'm a married father of two, and every year stories like this hit me harder.

dottjt

While not quite the same, my partner was diagnosed with stage 4 cancer a few months ago, a few days after my daughter's 1st birthday.

I think one thing I worry about is my daughter possibly not growing up with a mother. Like how that will affect her.

It's been traumatic for myself personally, but it hasn't been ...I'm still highly functional and I'm still continuing to live life to the fullest.

jackconsidine

Oh man, I’m really sorry to see Jake passed. I read their updates every few months when they’d land on HN; it made me sad to see the past tense of “dying” this time. Rest in peace

fossuser

The other posts on her substack are also worth reading (and the earlier ones from his perspective) - I read through a bunch of them last August when one was posted. A tragic story well told, something that waits for all of us.

dsign

That terrible brutal grief is what death leaves us every time. I remember Jake's posts. He fought, and he all of us to fight.

https://www.youtube.com/watch?v=cZYNADOHhVY

Zebfross

Having a child is hard, so having a child by yourself must be harder. All I know is that our hearts don't fill up and can always fit more love.

darkknight107

So sad to hear. I know the words of a stranger probably do not matter but trust me when I say this, you'll get through this. Sending you virtual hugs.

kbarmettler

Her words lived.

j_bum

So expressively and beautifully written.