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The hallucinatory thoughts of the dying mind

dr_dshiv

My father, at one point, imagined himself on a Greek island. “Ouzo!” He’d offer from his hospital bed.

He was an avid fisherman and his last words were, distinctly, “Big fish.”

Yet, he was mostly unconscious for his last day. I spent time talking with him as he slept, massaging his hands and feet. Later we had a party for him and played music. Around 10 at night he began to die (the breathing changes). At the very end he opened his eyes, looked at my mother, sister and me, and passed.

It was a beautiful death.

nfRfqX5n

I will be going through this very soon. Thanks for sharing

boredemployee

Had a really similar experience with my dad, the only difference was that he was calling for his mom (that passed away many many years before) in the language of the country he was born. It was a really touching thing that I'll never forget.

grazing_fields

I wish my dad could have had the same experience. My parents were in denial the whole last few months, so he ended up passing away basically by himself in another state, with a relative whom he didn't like by his side. He had a similar experience of waking one last time and looking around, then passing. Such a terrible shame he didn't see any of his immediate family.

jvanderbot

Thank you for sharing this. We should all be so lucky.

rufugee

Agreed. Thank you. My day was made better by reading this.

ljf

Sounds perfect, I'm so pleased you and your family were able to have this. I'm sorry for your loss, but hope this pleasant passing brought you comfort.

My father (83yo) died a year ago - just before Xmas. Most of the family got to see him the day before he died and he was in good spirits as we were all preparing for xmas together. He woke about 5am and asked my mother and brother for help getting to the toilet (which was unlike him). Once he was back in bed he rolled over, let out a sigh, and my mother thinks that is the moment he passed. 30 minutes later he was cold and couldn't be revived. I am still sad I wasn't able to say goodbye while he was conscious and always imagined we'd be talking to him in the period of his death - but equally, dying at home, in your own bed, seems so comforting and comfortable.

rpaddock

About eight hours before my father died he was having a conversation with his unseen mother, who died when he was 14.

I asked him "Who are you talking to?" and got a rather rude response, not like him, "My mother" in a tone you give a five year old "go away kid you are bothering me".

The International Association for Near-Death Studies (IANDS) is worth checking out if you have interest. I've never had a NDE, however I've spent a lot of time in their library in Durham North Carolina.

https://iands.org

hibikir

We don't even need to be all that close to death for this, just suffer sufficient brain damage. I have a family member that had enough mini strokes that, whenever they have something like an urinary infection, they disassociate from reality and start talking to dead people, and they understand reality as if they were children. It's how we detect infections, as the hallucinations come in pretty early. A course of antibiotics, and they are their normal elderly selves, remembering little of the previous week

ultrarunner

My understanding is that this is common with UTIs, and isn't necessarily predicated on having previously had strokes or brain damage.

pipes

Well this is a holy shit moment for me. My grand mother was having really strange hallucinations, like explaining how she was talking to people on TV and the neighbours came round and joined in too. I had never heard about the infection thing before. It was really upsetting my mum and no health care professional ever suggested it might be infections. This was ten years ago and she's dead now, but I wish I'd known then.

It sounds very similar to your experience, they'd just randomly come and disappear after a while.

devilbunny

> no health care professional ever suggested it might be infections

Acutely altered mental status (without specific findings suggestive of a stroke) is, first and foremost, assumed to be a metabolic issue. I've been a practicing doctor for twenty years and it wasn't a new thought at the time. I don't know why nobody suggested it to you. It's been basic understanding for, well, ages.

FirmwareBurner

>About eight hours before my father died he was having a conversation with his unseen mother, who died when he was 14.

Anecdotally, my grandad did the same thing a day before he died. Except he was talking to his best friend who's been dead a long time.

null

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tasty_freeze

Even in the best of cases, our perceptions and interpretations of those perceptions are often dramatically flawed. Add on top of that neural atrophy, loss of oxygen, accumulation of senescent cells, poor clearance of waste products ... and what comes out is often going to be gibberish, as the remaining working parts of the mind attempts to construct a coherent narrative from the broken fragments of sensory input and failing memories.

I got interested in consciousness 35 years ago or so when I read Oliver Sacks' "The Man Who Mistook His Wife For A Hat". Although the various people depicted in the stories had some physical deficit due to a trauma of some kind, it vividly demonstrated how we rationalize our way through the world more than we reason our way through it. Our conscious mind is much more of a facade than we typically imagine.

When people say, "Well, LLMs are just generating token N+1 from the previous N tokens, they really aren't thinking", I counter with this: we have been having this discussion -- are you at all aware of the stream of words coming out of your mouth, or are you hearing them the same time that I am?

Yes, sometimes we have deliberate thought where we rehearse different lines of reasoning before uttering something, but 98% of the time we are spewing just like LLMs do. And when we do engage in deliberate thought, each of those trial sentences again just appears without consideration; we are simply post-hoc picking the one that feels best.

Lammy

> Add on top of that neural atrophy, loss of oxygen, accumulation of senescent cells, poor clearance of waste products

I think the enjoyable thing about recreational drugs is the way they alter the normally-imperceptible boundaries between body/mind/Self. It provides an opportunity to understand what each of those things really are and what each contributes to my sense of being. I don't see these examples as all too different even if they are failure modes :)

lostmsu

So what did you understand that you did not know before?

Many people make the "opportunity to understand" claim, but I'm yet to hear anything meaningful coming out. Are you familiar with this joke: A guy decides to do drugs and keeps a notepad nearby to write down any profound revelations he has while high. The next morning he checks the notepad and finds he only wrote one thing: "The water is wet."

nextaccountic

Here's this famous question (I can't readily find a source so I will say as I remember)

There is a scientist that studies color. She knows everything about it that can be possibly known. She knows the colors of everyday objects, she knows how colors work, how light's wavelength affects its transmission, etc etc. She is also fully colorblind (achromatopsia).

One day, she finally can see colors somehow. She isn't colorblind anymore.

The question is: now she can finally see the stuff she knew only intellectually, did she learn anything new?

nis0s

> Our conscious mind is much more of a facade than we typically imagine.

It patently is not, but I can see how it’s easy to believe it to be so. When you juxtapose the behavior of self-conscious organisms against reactive behavior, such as that observed during sentience-level consciousness, it’s easier to tease apart properties inherent to the conscious mind. For example, an LLM is going to have a hard time adjusting its behavior in an anticipatory manner to another organism, as their capacity for self-learning is currently limited.

But even relatively simple-minded animals with relatively higher-level cognition will adjust responses not only based on prompts, but also on their own nascent understanding of what’s expected behavior given a situation by continually adapting and forecasting, which is different from simply forecasting. I got interested in LLMs because of all the hype around their capabilities, but even simpler-than-human minds are doing much more complex stuff than generating the next probable step.

BLKNSLVR

> Oliver Sacks' "The Man Who Mistook His Wife For A Hat"

Amazing book. Made me entirely reconsider how I think about human behaviour and "how they got like they did".

Should be required reading for being a human living in a society.

johngossman

Sacks also wrote a book called "Hallucinations," which is excellent and highly relevant to this article. If any of you have loved ones who are starting to hallucinate or experience visual artifacts of the type associated with Charles Benoit Syndrome, I highly recommend reading this.

TriNetra

It's interesting to reflect upon who is "I" presented with these experiences. Brain might be hallucinating in a given moment due to infection or something. But the witness "I" is ever-intact experiencing come what may.

null

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DoctorOetker

> When people say, "Well, LLMs are just generating token N+1 from the previous N tokens, they really aren't thinking", I counter with this: we have been having this discussion -- are you at all aware of the stream of words coming out of your mouth, or are you hearing them the same time that I am?

Neither awareness of the stream of words coming out of my mouth, nor hearing them simultaneous with any audience proves or disproves LLM's generating token N+1 from previous N tokens.

I believe we both disagree with the irrelevant observation that "Well, LLMs are just generating token N+1 from the previous N tokens, they really aren't thinking"

But I also disagree with the idea that we are strictly passively aware of what we express: that would constitute a return to fundamental dualism (separation of body and mind), conventionally called dualism.

Dualism is a pragmatic approximation to make to model peoples thoughts and behaviors, but there is a reason dualism was superseded by materialism (the philosophical standpoint, not talking about materialistic ideology), consider the following thought experiment: suppose one believes in a type of fundamental dualism (not just using dualist approximations for computational efficiency considerations) where the sentient "mind" is passively experiencing what happens in the material brain, experiencing emotions, colors, tastes, smells, concepts, thoughts, ... then wouldn't it be such a coincidence that this materialistic brain happens to describe precisely what you seem to experience? a fundamental theory of dualism where the mind can not influence the real world -which includes the brain- but where the real world can influence the brain and the mind is utterly unlikely: if the mind could not affect the operation of the brain, how can the subjective experience which the mind perceives ever end up in the material brain so it can be materially pronounced etc?

For example, a human brain is composed of cells (neurons), a nation is composed of human citizens.

Suppose you make the claim:

"My subjective experience is neither that of a single neuron, surrounded by other neurons; nor that of a nation, surrounded by other nations in a geopolitic landscape; no my subjective experience is at the level of a human with its single brain"

Then I believe 99% of the population would agree with the above statement. But if simultaneously the dualist worldview were correct:

* that the material world obeys some rules of physics (known and unknown, indeterministic or not),

* that the subjective experience is a oneway projection of what happens to a limited subset of the real world,

* that these distinct "minds" passively observe what happens in the brain, and this indirectly, what happens in our sensory organs, and this indirectly what happens in the outside world;

* that these "minds" can exert no force or influence on the brain, and thus not on the muscles, and thus not on the outside world

... then it would be an extremely unlikely coincidence that human brains and bodies are expressing these facts which happen to correspond to our supposedly 100% passive observing "minds".

Statistics and likelihoods are part of mathematics, and indifferent to physical postulates. Mathematics is part of logic, indifferent to physical postulates. The passive dualist hypothesis can be rejected with arbitrarily high confidence, just ask more and more people if their subjective experience is closer to:

a) one neuron among many b) one human among many c) one nation among many

So we know that this form of dualism is subjectively falsifiable, just like others can not prove their experience matches b) more than a) and c); neither can I prove that my experience matches b) more than a) or c). But subjectively this is being proven to me all the time, I don't need to see proof of b) I experience it every day, all life long.

So IF dualism does nevertheless hold, I have proven to myself it can not be this oneway passive delocalized homunculus form of dualism.

So we have proven that IF dualism holds, that this supposed "mind" MUST be able to perturb the material body's "brain" and thence muscle, and outside world.

But at this point we are basically saying that not just the brain but the "mind" must be part of the physical universe, since it is interacting both ways with the material brain. No distinction between physical variables of the brain and physical variables are presented, apart from some insinuated specialness of "mind" quantities (variables in physics) and "non-mind" quantities (say a neuronal spike), without any definition how to even recognize the difference.

If the "mind" quantities can influence the "non-mind" quantities and vice versa, then we should be able to device measurement apparatuses to measure not just the "non-mind" quantities in the brain (like EEG signals, etc), but also the "mind" quantities (to which the "non-mind" signals like EEG supposedly merely spuriously correlate). Without any specification of their supposed specialness compared to the usual explainable-by-boring-physics-probabilities, the goalposts can always be moved: perhaps its little angels feeling the neuronal spikes and those same little angels slightly delaying or enhancing/quenching probabilities of those neuronal spikes: foreseeably every newly discovered deviation of Nth order approximation, together with its corresponding Neuther theorem quasiparticle, yadda yadda yadda, will be initially hailed as vindication of dualism ("so there is possibly a separate Mind!"), and subsequently invalidated after arduous reconsiderations by the materialists and reductionists, and the deviations will turn out to be explained by considering the N+1th order approximations of the rules of physics...

So we discover that this second type of dualism (with both way interaction) is unfalsifiable, and only superfluous, and hence not the domain of science, but mysticism. Might as well say that invisible angels are pushing the Moon in an orbit around the earth, and pushing the Earth in an orbit around the sun, etc... until one is basically saying the invisible angels are executing physics (probabilistic or not) to the T, time and time again. So basically the angels contribute nothing to the predictions of physics.

So dualism was rejected in favor of materialism, even precisely because everybody answers b); not despite it!

rixed

Not the person you replied to, but I totally agreed with him and, interestingly, cannot make sense at all of your reply. Those points especially seem to be the crux of your argument but I don't see the logic supporting them:

> then wouldn't it be such a coincidence that this materialistic brain happens to describe precisely what you seem to experience?

> then it would be an extremely unlikely coincidence that human brains and bodies are expressing these facts which happen to correspond to our supposedly 100% passive observing "minds".

I fail to see what's unlikely about the viewpoint that the mind is passively watching the movie that our body is the main character of; Or why such a one-way relationship would contradict the mind being real and "physical". Physics is full of one way functions. It is not the first time that I totally fail to comprehend one side of this very debate, and it feels like I'm missing an essential insight.

I understand that in dualism the "mind" (the conscious experience) does not bring anything to the physical world and look therefore utterly useless, which is not satisfactory but does not prove or disprove anything (that's what I understand to be "the hard problem of science"), like the angels pushing the celestial bodies according to the laws of physics. I would gladly rule out the possibility of such useless conscious experience like I rule out the theory of the little angels, if not for the personal experience I have of it :)

So, to follow along that analogy, it seems to me that yes indeed the moon obeys the law of physics but still somehow some little angels that I can see pretend that they push it around. And your argument sounds like "there must be an influence from these angels to the laws of physics because otherwise it's too unlikely that those angels would be seen", which sounds suspicious to me given how the laws of physics stands very well on their own.

I don't know if I've made the discussion clearer or more opaque. Would you be able to rephrase your explanation differently?

DoctorOetker

Consider the following visual phenomena / optical illusion:

https://michaelbach.de/ot/sze-silhouette/index.html

The silhoute may be perceived as rotating clockwise or counterclockwise.

There is not in fact enough information to determine which direction objectively.

Now suppose 2 types of experiments:

A) someone wears spy glasses and observes this effect, and is tasked to regularly speak out what direction (s)he perceives the figurine to spin. The spy glasses records what the subject sees, but also these remarks.

B) you observe this animation yourself, not wearing spy glasses, and you yourself speak out loud what direction you see the figurine spin, including occasional flips (which occur more frequently on faster / smaller variants of such animations)...

... now ...

Suppose you are watching a recording of someone else's A) variant, effectively you may be seen as a passive spectator of a prerecording of this other person. While watching this spy glass prerecording you would have your own interpretation (clockwise or not) and occasional flips of direction, at the same time you would be hearing this other person's interpretation, and you might agree with this other person half the time and not for half the other, the timing of the flips wouldn't correspond etc. Even guessing a coin toss will be correct half the time.

However if you yourself perform B) and speak for yourself, the statistics change, and the rotation direction your supposed 100% passive "mind" perceives corresponds with what your material body is speaking out loud all the time.

How do you explain that discrepancy in statistics? How was your brain and body able to systematically express what your supposedly 100% passive "mind" homunculus observed?

Hence you have "proven" your "passive mind spectator" to actually be active, and thus necessarily BE MEASURABLE. You come to the conclusion you are a materialist after all, even though the dualist simplifaction of the world is useful and pragmatic, you have shown it to be fundamentally wrong.

I wrote "proven" in quotes because you can't prove to a third person this correspondence between (counter)clockwise perception and verbalization.

But you have certainly proven this to yourself.

IanSW

Modern materialism (since the 17th century) defines the material world by that which is quantifiable and hence measurable. Consciousness is not wholly characterised by what we can measure. Therefore, if one believes that consciousness exists, then necessarily materialism is false.

This widespread notion that whatever affects the material world is itself material fails to understand what both materialism and dualism means.

tasty_freeze

Thanks for the extensive response. However, I'm a materialist and I don't follow your point. You say dualism was replaced by materialism, but there are still billions who subscribe to dualism; it wasn't replaced.

My claim isn't that the current LLMs are thinking; my claim is that much of what comes out of our mouths aren't any more sophisticated.

IanSW

Speak for yourself

sys32768

My mom passed recently. She battled Alzheimer's for 15 years, then passed five days after breaking her hip, even though she was singing and goofing around the day of the break. She was only 77.

A month prior to this, she had begun to sometimes stay in her bed often half the day, lying awake looking up at the ceiling with the most joyous look of peace in her eyes, as if seeing something or someone very special, often whispering as if in dialogue. This went on for hours sometimes.

I was incredibly moved at the time, but there were otherwise no indicators she was near death, so I filed it away as some new development in the progression of her disease.

I now take great comfort knowing this is not uncommon among people who are soon to die, especially since she was unable to communicate the day she died.

inglor_cz

My great-grandma talked to several children that she miscarried when young.

BSOhealth

I don’t want to trivialize the positive aspects this can have on someone who otherwise might have a sad or challenging death, and to that extent perhaps it’s just an evolved mechanism to make us accept death more gracefully.

But if you’ve ever stayed awake for many days or had other hallucinogenic experiences, you’ll know how powerfully thoughts can manifest. And how deep our memory actually goes. Clearly it’s inappropriate to vividly see your memories during waking life, but as you transition to death those barriers are less necessary as the body diverts increasingly scarce resources to surviving just a few moments longer.

didericis

> as you transition to death those barriers are less necessary as the body diverts increasingly scarce resources to surviving just a few moments longer.

The more I think about survival based evolutionary explanations for NDEs, the less sense they make.

Obviously evolution is true, and there's an obvious relationship between the physical degradation of the body and the brain and hallucinations. I'm not trying to make a cheap appeal to mysticism and deny these things, but NDEs are profoundly weird and difficult to explain when you think about them from that angle.

Why would a body motivated to survive at all costs waste resources creating comforting hallucinations with some kind of internal coherence during catastrophic failure? Wouldn't a more logical and theoretically sound failure mode for a body trying to survive at all costs be some kind of increasingly incoherent descent into something like TV static as resources get diverted from sense making to repairing systems critical to survival? Or just pure unconscious blackness as with general anesthesia? If consciousness is purely computational, then any coherent internal experience implies the brain is spending biological resources maintaining the physical integrity of something, despite being increasingly severed from the sense input it needs to actually navigate the world to survive. And if the body is going through the trouble of maintaining some level of internal consciousness as it nears death, why wouldn't it simply create a hellish ever increasing amount of fear and pain until the moment of complete physical death to create the strongest possible motivation to avoid ever repeating the experience?

Many people who experience NDEs and survive report craving a repeat of the experience and losing their fear of death. That's profoundly counterproductive from a survival standpoint. There's an argument about group related benefits and a need to offset communal panic due to our knowledge of our own mortality that's easier to ground in a purely survival based explanation, and while that definitely fits better, I increasingly get the sense we're trying to overfit evolutionary explanations that assume a purely survival oriented computational theory of consciousness to things we don't actually understand nearly as well as we think we do, and that the fear of not knowing can just as easily be used to argue motivated reasoning for appealing to things we basically understand like computation and biology as the fear of death can be used to argue motivated reasoning for appealing to things we don't.

The history of all human knowledge is defined by an increasing ability to transcend and expand our theories to incorporate ever more detailed knowledge about previously unseen things. First we were convinced the world was made of unseen animal spirits, then we were convinced it was made of unseen combinations of the four elements in a world governed by a pantheon of superhuman deities, then we were convinced it was made of a hierarchy of unseen forces interacting with seen forces through God given, rationally discoverable natural law, and now we are convinced it is made of purely physical rules which may or may not be fully comprehensible given what we can observe, and those seen and unseen purely physical forces created complex biological systems that can model the world through different types of computation, some of which we understand, and some of which we don’t.

I think it's extremely unlikely that we've figured out the final and most comprehensive framework for understanding reality, and I think there’s a lot about conscious experience and our ability to meaningfully perceive and categorize things that are still deeply mysterious/poorly understood.

EDIT: Didn’t like my previous wording of this/changed it, and still don’t feel like I’m doing justice to what I’m trying to get across. Iain McGilchrist’s “The Matter with Things”, John Vervaeke talks about “Relevance Realization”, Freeman Dyson’s lectures/books about the importance of “heretical views” for the expansion of knowledge, Donald Hoffman’s work claiming evolved models of reality in every kind of environment never create accurate maps, and just observing how difficult the alignment/verification problem is in AI are all pointing in this same direction, and make a more compelling case for what I’m trying to say than I can.

pfannkuchen

Features don't need utility to exist. It may be a weird state precisely due to the lack of selection on what happens when death is already occurring.

For example, maybe NDE is the conscious mind's experience of certain functional aspects of the mind turning off. The conscious mind already integrates a dynamic set of functional mind aspects into something coherent feeling its entire existence, and so if some of those start turning off and a smaller subset is integrated, the fact that something seemingly coherent is still experienced does not necessarily need a special explanation. Perhaps subset integration developed to support brain damaged states, which do have selective pressure on them.

didericis

> Features don't need utility to exist. It may be a weird state precisely due to the lack of selection on what happens when death is already occurring.

Totally agree.

But if you can't use selection pressure to directly explain NDEs the same way you can with "fight, flight, freeze", fear of the dark, sexual attraction to signs of physical health, etc, and you need to use other things we don't really understand (like how that "coherent feeling" gets created) to connect NDEs with selection pressures, selection pressures aren't really helping to explain things.

It's also not like explanations for NDEs based on some combination of information processing, known cognitive functions and selection pressures have to be 100% "wrong" for there to be better explanations. Cliche example, but the ptolemaic model of the universe actually predicted the observable orbits of the planets pretty well and explained the lack of observable motion of constellations without needing to appeal to seemingly absurd "special explanations" like stars being an enormously huge distance away and "unseen phenomenon" like stellar parallax that was unobservable to ancient astronomers.

All of the basic ingredients in the ptolemaic model like orbits, planets, and geometry were still relevant in the heliocentric model, even though their arrangement was radically different. That could easily be the same for the relevance of information processing, known cognitive functions and selective pressure in relation to a seemingly absurd "special explanation" that ends up proven correct by some as of yet unseen equivalent to a breakthrough observation of stellar parallax.

stormfather

That was beautifully written.

There are an estimated 50 sextillion (5*10^22) habitable earth-like planets in the observable universe. On average they're 1.8 billion years older than Earth. Think about the implications of this for a minute. We don't see green space men, but that's not how we would expect life forms billions of years more advanced than us to appear. The entire universe must be suffused with intelligence, and if that's so, doesn't that suggest there is more to life than what you see on the surface? I find this conclusion inescapable when considering the size and age of the universe. There is more to life than meets the eye. How could it be otherwise?

didericis

Thank you, appreciate the compliment. I actually just edited it/got a bit self conscious about the tone and added some references, in part because I think truly grokking the core of what I’m saying (which fits perfectly with what you’re saying/is a conclusion I’ve also come to) is both really profound and really easy for engineering minded people like most of this audience to dismiss if you don’t ground it properly. Was worried I was getting overly fluffy and people would then assume the evidence and strength of the argument was less grounded than it is, and pared it down before seeing your reply. Hopefully I kept enough to retain what resonated.

There’s something about acknowledging the extent of the unknown that’s extremely humbling, awe inspiring, and difficult to adequately articulate, and it’s something I think is important to spend extra effort communicating.

rixed

> We don't see green space men, but that's not how we would expect life forms billions of years more advanced than us to appear.

From the history of life on Earth, we should expect extraterrestrial life forms to appear as a self replicating molecular device way simpler than this accidental peculiar ape with a large brain that we usually associate with the notion of intelligence.

cjameskeller

>Why would a body motivated to survive at all costs waste resources creating comforting hallucinations with some kind of internal coherence during catastrophic failure?

I am a religious person, but for someone in such a situation, a naturalistic explanation may be that, if what will increase their chance of survival from "effectively zero" to "slightly more" is the attention & care of others around them, such "narrative" hallucinations may make it more likely that they receive that care.

matthest

Yes. The explanation of "it's just something the brain drums up to make death more comforting" has always seemed like something people will laugh at 100 years from now.

wutwutwat

Please describe what makes one's death a "sad death"

MomsAVoxell

A sudden or unexpected departure, under some circumstances that highlight the grief of passing, such as in a car accident on the way home from a wedding, or having just given birth, or some such circumstances.

I think I can imagine there being ‘non-sad’ deaths, though - such as in the case of dying close to 100 years old, surrounded by ones loved ones, family, friends, with time to say goodbye. So, basically any circumstance which does not allow for the ideal departure, could be classed as a ‘sad death’ ..

null

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temp0826

Any death of a child. Astronomical loss of potential vs someone who has lived a long life.

strogonoff

Some cultures weigh the death of a child vs. the death of an old person in a way that makes the latter a much more severe loss, given the unique wisdom accumulated over years. I believe it is the opposite in developed countries today due to lower birth rate and the tendency to preserve inordinate amounts of information arguably making the wisdom of an old person seem mostly useless.

phantompeace

What's the word you call your younger self when you think you've got it figured out? Foolish seems too gentle a word. Before having my own, I would wonder why everyone spoke of losing a child as a pain beyond all others. I even had the audacity to think they were being dramatic - after all, they'd only known their child for such a short time. After having my own, I find myself breaking my own heart with the thought of loss almost like my spirit is trying to build calluses against a blow I pray never comes

formerphotoj

I've not lost a child and I don't "intend" to, so for me there's the vast investment in bringing them in, raising them up, and to lose both the past and future at the "wrong time"...astronomically heartbreaking. Never used to cry during movies when a child is lost, now I do every time.

pfannkuchen

I think it's less loss of potential (though that is a good rationalization) and more that people who weren't sad when they thought about their kids dying didn't become ancestors to the current set of humans, via the obvious mechanism.

BSOhealth

Of course, I’d be happy to! That would be something in contrast to all the fortunate, welcomed, gleeful, and celebrated deaths we hear about frequently in Western news and experience in our own personal lives.

Instances where people are not ready to go, sorrowful, regretful, spiteful, guilty, etc.

wutwutwat

I don't know why I was downvoted for asking a legit question, but alright.

The answers still don't make any sense

nsxwolf

Your question just came off as incredibly obtuse.

2snakes

Real yoga is possible.

wutwutwat

That has what to do with this person saying a death is sad?

jawns

> "Do not contradict, explain away, belittle or argue about what the person claims to have seen or heard," reads a short text that a hospice provides about the dying process. "Just because you cannot see or hear it does not mean it is not real to your loved one. Affirm his or her experience. They are normal and common."

Not all hospice or elder-care providers recommend affirming hallucinations.

Here's a quote from a nursing home guide that explores the ethical considerations of this practice:

> Lying to someone with dementia, often termed “therapeutic lying,” poses a nuanced ethical dilemma. While entering a person’s altered reality can indeed reduce their immediate distress, it’s important to acknowledge that lying is still lying.

> Over time, this practice may lead to confusion, especially in moments of clarity, and strain the trust and relationship between the patient and caregiver.

> This complexity has led caregivers and professionals to explore alternative communication strategies that honor the truth while providing comfort and reducing agitation. Two such approaches are reflection and redirection. Reflection involves acknowledging the person’s feelings and statements without directly affirming the distorted reality or lying. Redirection gently shifts the conversation or activity towards something positive and engaging without directly contradicting the person’s beliefs.

1659447091

The first example says it's "...about the dying process"

The second example is for "...someone with dementia"

jjmarr

While this nursing home guide is interesting, it's important to acknowledge that it sounds like ChatGPT.

yannis

I had a NDE two years ago. I had a lucid experience, saw someone (looking like a pastor) telling me "Do not be afraid, the same way you had to be born to experience this world, we need to die to experience the other world", I then woke up. I am not religious. It did leave a strong impression on me and think about it often.

qwertyuiop_

Wow just wow ! Your comment has given me a new perspective on fear of death. Are you able to share what caused NDE ?

yannis

I had a heart attack while visiting a hospital for a check-up, so got lucky. Eventually had a stent inserted.

tamaharbor

Just before my mom died recently, she told me that my dad (died in 1997) had finally come to take her home. I am OK with that.

pugworthy

When my sister was dying of cancer, she reached a point where she wasn’t speaking.

So not exactly last words, but I remember holding her hand and she would give me two squeezes. I would like to think it was her ‘saying’ “Love you” or “Thank you” perhaps?

I’d give her 3 back to say, “Love you too.”

NaOH

Peter Fenwick died in November 2024. The NY Times obituary last month described him as "a neuropsychiatrist who studied near-death experiences." I took note of his book, which I hope to read: The Truth in the Light: An Investigation of Over 300 Near-Death Experiences.

In addition to his obituary, the Times published readers sharing their near-death experiences.

https://www.nytimes.com/2025/01/17/science/near-death-experi...

https://archive.is/cKBDL

ImHereToVote

I often notice these demented moments before I fall asleep. Completely nonsensical thoughts like the argument from bear bicyclist study when you need to turnkey.

MadcapJake

Salvador Dali would hold an object like a spoon in his hand while sitting in front of his canvas and fall asleep. This would cause him to drop the spoon waking him back up and then he would draw what he saw.

atiffany

Hypnagogia is the name of this state between sleep and wakefulness - https://en.m.wikipedia.org/wiki/Hypnagogia

EvanAnderson

In my youth I'd keep friends on the phone entirely too long, and sometimes fall asleep while talking. (How my friends tolerated me I'll never know...)

Occasionally I'd realize I was saying something ridiculous and catch myself. Most times, though, they'd ask me for clarification about whatever crazy-sounding thing I said and I'd snap back to wakefulness (briefly). I wish I had recordings of some of those things I said. They left my mind almost immediately (to the point that I couldn't respond to questions asked directly after whatever I'd said). It would be entertaining to know what I was saying. (I didn't ask friends at the time and, at >30 years ago, I doubt any of them remember.)

I read to my daughter before bed. She drifts off sometimes when I'm reading "boring" stuff (at her request) and says fun things. I keep notes and ask her about it later. I enjoy the window into her mind.

aszantu

Sleep writing is funny

Put a piece of paper under the hand with a pencil, write down thoughts until you're gone, read in the morning - profit

aszantu

hehe, those who tried it, what did you get out of it?

croisillon

at the beginning of the night i regularly have this strain of thought: "oh shit i'm still not sleeping? but i was just planning a vacation on the moon, i must be sleeping"

aradox66

"I'm still awake" can become a kind of assumption that survives falling asleep

siavosh

I think these thoughts are happening all the time we just don't normally notice them. During the transition to sleep, some parts of our thinking mind start shutting off and the filter cracks and that's what we notice sometimes, if we remember.

ImHereToVote

It might be the latent space hidden in the deep parts of our brain.

waltbosz

I've always had difficulty falling asleep and I often notice when I enter this state and I get excited because it means I'm about to fall asleep. I'm excited because the frustration of still being awake is over.

Also, sometimes when I wake up I have a few minutes where nonsense ideas seem perfectly reasonable. Or it will feel like a complete loss of inhabitation.

derwiki

I similarly get excited, but regularly so excited that it wakes me back up.

aradox66

"Terminal lucidity" is common and seems to undermine the notion that the physiology of the dying brain necessarily implies impaired function.

caspper69

My great grandmother, who was 83 or 84 at the time, had had a brain tumor (which was removed once it got to between golf ball and baseball size) and was pretty far along into Alzheimer's as she got got close to her death.

For the last several months, she wasn't able to feed or clothe herself, and she was basically immobile.

The day she died, she got up, went to her room, made her bed (unthinkable in the state she was in), put on her "Sunday's best" and laid down peacefully in the middle of her bed and passed.

Her daughter (my grandmother), was floored. She just said she must have just known it was her time, and that she had a few minutes of lucidity before dying.

Whether there's any truth to that I'm not qualified to answer, but if you had seen the state she was in for quite some time prior to that day, her actions would certainly have been surprising to say the least.

acegopher

It's more common than you think, and it's called "terminal lucidity": https://my.clevelandclinic.org/health/symptoms/terminal-luci...

w10-1

Terminal lucidity as well as activity may happen when the brain/body realizes it is really losing it, and mounting any and all last reserves of energy, instead of conserving energy for a long healing process. So it's consistent with compromised physiology, when activation can overcome whatever is otherwise stupefying or immobilizing.

Something similar happens in some recoveries which then fade. People will come out of a coma briefly and seem fine, and then go back, never to return.

Very difficult to study.

Also this is quite distinct from what you might have meant: for elderly who have accepted their death, they may experience peace with anything in their experience.

aradox66

That may be! It's a bit handwavey, but plausible. However, I think it poses the strongest challenge to the argument of the article, and I don't think it can be trivially dismissed.