ADHD and monotropism (2023)
54 comments
·November 22, 2025cjonas
pdpi
> People always describe the disorder as "lack of focus" but that's a really poor description for what I have.
The diagnosis, for me, became obvious when I reframed it from "lack of focus" to "poor control over what I focus on".
TexanFeller
From decades of experience and lots of reading it's exactly this, and this is the important detail that most neurotypicals including many doctors are missing that would allow them to understand instead of being dismissive.
I find monotropism an apt way of understanding it. A normal person's attention is like a flashlight they control that illuminates much of a room at once. Autistic brains are a tight beam flashlight, almost a laser for some, with its aim difficult to change. ADHD brains are more like a tight beam flashlight on a motorized mount that swivels in all directions, but you're not always in control of where it swivels to...it's like an AI constantly overrides your direction inputs and points the light at what it deems most exciting or urgent at the moment.
bilsbie
> I would say I have "hyper focus", to the point where if I'm working on something interesting, I will lose track of time and am unable to redirect my attention to anything else.
I feel like knowing this tendency has made me extremely protective and avoidant of taking on tasks. I appear “lazy” to the outside observer. It’s something I’m still trying to solve.
coldtea
>often a new idea will strike me like an epiphany that immediately takes the top spot of my attention.
So, lack of focus, then? Lack of focus after all is not the same as inability to focus in general.
It's more the inability to focus on what matters, without getting distracted and focusing on another thing.
ohboyhereitgoes
[dead]
__MatrixMan__
Same here. People sometimes say my stuff is over engineered. What they're seeing is that I have additional requirements relate to keeping the project in a shape where I stay interested in it long enough to make progress.
Its not exactly a recipe for reliable technology but neither is what the managers are suggesting (or rather, suggesting differently today than they did yesterday) so I manage to make it work out OK most of the time.
ddtaylor
This used to upset me, but as time goes on I'm more excited about it. Sometimes I run into someone else that only does that one or two things. They are happy they finished them, etc., but they seem envious of being able to do lots of things even if they don't end up mattering.
cjonas
Ya sometimes it feels like a missed opportunity, but I think it's mostly just ego and not anything of real value. On the flip side, I feel like I've gained an incredible amount of diverse experience.
R_D_Olivaw
This right here.
The shear breadth of experience is sometimes staggering.
The difficulty for me is translating that into sustainable income. Job and experience hopping is great when your young, but then you get older and your resume portrays you as a total flake. (And admittedly, of the project is slow and boring, I might just dip. Life is short, I have things to do. And sitting still in an office for 8+hrs a day isn't one of them)
chipcomp
There are different types and combinations of ADD/ADHD/Autism/Parkinson’s/etc.
The closest to reality anyone tried to describe are Dr. Amen’s ADHD “types” and regions of the brain related to attention-deficit symptoms. But it’s much more complex. E.g. when you don’t process Folic Acid due to MTHFR mutations, chemicals can be generated that cause other genetic mutations in the brain over time, causing psychosis. And some stimulants with likely undiagnosed predisposition of paranoia can cause schizophrenic-like symptoms for years. If you just take what a psychiatrist or even the supplements that Dr. Amen would suggest, it may be a miracle for some people, but for others that miracle may turn into a nightmare. I didn’t recognize that I was having hallucinations and paranoia until years later.
I’ve found a set of things that I eat and natural supplements that work for me, and it took years of struggle. I miss the meds, but they didn’t make me better, they almost ruined my life.
thoughtFrame
Well, it's well known that ADD/ADHD aren't about lack of focus, but about an inability to direct one's focus to where it's needed.
Normal people can think "I need X, let's work on X" but ADHD people are at the mercy of what's "chosen for them" by their brain.
This was probably fine 4000 years ago, when the world was looser, and people could find their place in life regardless of their particular quirks, but not so much nowadays.
This difficulty or inability to direct focus can be "trained away" with enough effort, but it isn't easy at all.
__MatrixMan__
I think it's the opposite. 4000 years ago we would fail to prepare and not survive the winter.
Nowadays we get by by occasionally solving a problem that nobody asked to have solved but golly the solution is kinda neat.
coldtea
Recent research suggests the opposite: ADHD made for better hunters which was a valuable asset to the rest of the group.
And even later on, community life, with fewer distractions, less sedentary boredom (like in a modern office job) and fewer demands for precise timing and continuous focus, also made it easier. Even school either didn't exist or was a much loser affair than the institution we know for the past 2 centuries.
I'd prepare for winter 10x more easily than focus on some boring ass corporate task in a world filled with bullshit distractions and endless structured and strict time demands. And I'd have an extended family plus community to help with things.
Consider how people think it's rude if you're somewhat late on a rendezvous or meeting etc. Then consider how clocks and precise timekeeping weren't a thing for most of history, nor was reliable transit, cars, roads, and stuff. You got there, when you got there - even today in more rural countries.
AgentMatt
I also believe it to have been easier with ADHD in the distant past. My reasoning is that in a small, but tighter group there will be others who can compensate for the ADHD person's executive function deficiencies. But the ADHD person might bring enough of a benefit by occasionally going down rabbit holes or discovering stuff that's off the beaten track that the group will still tolerate them.
drbojingle
If we died off we wouldn't be here.
thunfischbrot
> This was probably fine 4000 years ago, when the world was looser, and people could find their place in life regardless of their particular quirks, but not so much nowadays.
Is this likely? My overgeneralizing gut feel would be that more people who would have traits which might be perceived as unusual and impede survivability 4000 years ago would be more likely to receive a chance to live a regular lifespan in most today‘s societies.
coldtea
Today we're much much more about conformity, rigid structrures, time management, and so on, than 4000 years ago, or even 50 and 100 years ago.
And today we're much less about having extended families and communities that take care of their members and lend a hand.
At best we have some half-arsed provisions by an indifferent state, and we're left on our own. A slip and you're broke, or homeless, or depressed on your own.
teamonkey
Increased thrill seeking activity includes sex. The evolutional advantage could simply be more chance of passing on genes; from that point on it doesn’t matter if you fail at life, get outcast from society and/or die young.
coldtea
To be fair, that's what people mean when they say "lack of focus" too.
They don't mean "this person can't focus on anything", but "they can't focus on their school projects, their work" etc. They don't care if "but hey, I can hyperfocus for months on the history of late Roman battles or throat singing techniques".
elemdos
I feel like that’s a different type of ADD or something. My wife has that type, so if she’s on her phone or focused on something I almost have to shake her to get her attention, whereas I’m very much the opposite (hard to focus on anything). Makes it hard to watch a series together bc she always wants to binge the whole thing in one sitting and I can never watch more than two episodes at a time.
jtrn
If anybody has a question for a clinical psychiatrist from Norway who has worked with both adults, children, and at an inpatient unit, over many years, feel free to ask. Maybe I can contribute something compared to many of the computer-related discussions here that are beyond my expertise.
On the article I would somewhat agree but it’s too limited a view. It ignores too much of the at current assumed underlying causes that we know are relevant. For instance, it’s more correct to say that autism is associated with an increased attentions to “details”, not small things, and challenges with associations and broad concepts, maybe grounded all the way down to increased dendritic connectivity due to less aggressive pruning. of Also, the effect of motivation to focus over a period of time on unrewarding activities is not well incorporated into this theory of (monotropism). I thing there are some valid obersvation but it’s way to simplistic a model when working with real life ADHD. For instance, on interesting commonality seems to be inability to filter out information. But ADHD are unable to filter out Salient content (like a conversation) and autism are usually unable to filter out details or granular sensory stimuli.
Anyways. Ask and I can attest give my perspective
styluss
What kind of work accomodations have you seen that work/help for people with autism or ADHD?
jtrn
There are two levels to this. The Standard Environmental Fixes This is about finding the right level of stimulation vs. distraction. Many people with ADHD work better with external stimulation, like music. Small habits help, too—like taking photos of tasks to remember them. (e.g., snap a photo of the empty printer paper so you remember to order more when you scroll through your camera roll later).
The Job Fit (The more interesting intervention). Sometimes we need to figure out if the problem is the job, not the person. Some people with ADHD simply cannot tolerate meaningless or monotonous tasks. An active person, for example, probably shouldn't work as a data entry clerk. for instance a 50-year-old builder who becomes a manager because his body is too beat up for hard labor. He is suited for leadership but can't stand the administrative work. Even if he wants the job, the boredom of the paperwork makes him miserable. These are the people who often present as depressed and benefit most from medication, as it gives them the stability to tolerate boring but necessary tasks. So basically spanning everything from small techniques, to existential and professional evaluation of best fit, to medication. Everyone is different.
theshackleford
Thank you for this post. It’s so obvious in hindsight, but I’ve been struggling for the last couple of years with my day job, especially the last while since I’ve been unmedicated.
In office, I listened to music almost my entire career, it’s the only way I got anything done for whatever reason, to the point I almost got fired once when a manager tried to stop me heading out briefly to pick up a replacement set of headphones when mine broke. I threw a literal tantrum almost, all I knew is I had no music, and that it was essential I did so I could continue doing what I was doing.
For some reason however, when I made a transition in the last few years to WFH, I’ve been living this bizzarely very different approach where I sit in almost complete silence all day long, and it’s the most I’ve ever struggled with my…focus for lack of a better word.
I now truly wonder how much this may have to do with this huge struggle I’ve felt to remain engaged or on task. I’m getting my job done, but 90% of my effort is me having to force myself to get it done rather than…just getting it done like I used too.
I suddenly feel very stupid.
NooneAtAll3
how often do you encounter screen addiction nowadays? (phone or pc overuse)
jtrn
I personally don’t encounter it as much as I did before when I worked at a children’s psychiatric institution. I think this is explained by the relatively generous welfare system in Norway, where it’s relatively easy to just drop out of society. A lot of people actually seem to prefer it, just staying home gaming or whatever. As such, they have very little incentive to seek help, and when they do, it’s usually someone else in their family who sends them to us, not them seeking us out themselves. I encountered a relatively severe case about 25 years ago: myself. I remember going outside, thinking that the real world was boring compared to video games, and wondering why more people didn’t just game instead of going about in the real world where nothing interesting happened. I’m extremely curious to how all of this is going to play out. I thought the behavior I was watching unfold, with nobody being able to stay away from their phone for 30 seconds, would create some sort of society catastrophe, but so far it hasn’t turned out as bad as I thought it would. But there’s still time I guess. Buy 1990 standards. Everybody is addicted to screens today. But by today’s standard, the normality has shifted a lot, and at least society is hanging in there.
daoboy
We've refined and relabeled the art of naming the demon that possess a person based on the characteristics of their symptoms. Then put a scientific sheen on the proscribed exorcisms and potions, without understanding the underlying issue. Modern day shamanism.
That is a bit hyperbolic (we clearly have real knowledge of the underlying neurological mechanisms), but closer to the truth than most people like to acknowledge.
The DSM was never meant to carry the burden we've placed upon it. https://asteriskmag.com/issues/12-books/you-arent-in-the-dsm
zbentley
I think this is partly right, partly misguided.
Misguided: there's now a focus on causality and precise identification based on symptoms and negative impact caused that wasn't present in the days of exorcisms and shamanism. Those eras were primarily characterized by people in positions of (often corrupt or unqualified) authority declaring diagnoses for others, largely without the consent of the diagnosed. Now, the default mode of mental health treatment is now focused on identifying symptoms according to specific rubrics, and diagnosing (or not) based on the presence of those rather than the agenda, religious feelings, or whims of people in positions of authority.
Partly right: what I described above is the default or desired diagnostic approach. We have a long way to go before it's actually performed for everyone. Coercive diagnoses are not uncommon even under modern medical/diagnostic practices: parents seek out spectrum or ADHD diagnoses for kids who aren't suffering, just not meeting parental expectations; psychotic people are handled by modern mental health systems with extremely low autonomy, etc.
Conversations here are also often confused: diagnoses for many mental health conditions are qualitative and measured not only by symptoms but by harms. The DSM and friends aren't like the diagnostic instruments for cancer or heart disease: physiological indicators are much rarer in mental health, so mental health diagnoses combine enumerations of behavioral symptoms and negative impacts caused to one's life. That implies a subtlety that's hard to come by among non-medical-professionals: you don't "have" ADHD (or OCD, Autism, etc.) in the same way you "have" an ulcer; you have those conditions if you present with a certain subset of the symptoms for the diagnosis, many of which are behavioral. Whether a particular treatment is merited has to do with both symptoms and the harms posed by those symptoms to your quality of life. So saying "I have ADHD" is a less meaningful statement than "I have some symptoms of ADHD and they seriously damage my quality of life, therefore I seek treatment".
Add to that our limited (but growing, and better than it was in past decades) understanding of pharmaceutical treatments for mental health disorders--many of the drugs we use to treat, say, depression or ADHD behave with all the subtlety of driving a bulldozer through a convenience store because you wanted to get a gallon of milk--and you have a complex area discussed using outdated binary pathological terminology. That's a recipe for suspicion and confusion.
In short, it is, as you say, hyperbolic to characterize modern mental health treatment as shamanism. But lingering corrupt medical practice and the complexity of the field for laypeople make it hard to see how, specifically, things are improving in this area.
g4zj
> There is a shattering sound at around 2:50.
Oof. I'm glad I turned down the volume in response to this warning. Why not just remove this awful sound?
nynx
I find this type of science is infuriating. Monotropism as a theory of autism or adhd is equivalent to saying that “tendency to focus on a few things” is a theory of autism or adhd. You’re describing the symptoms, which explains almost nothing. A theory of autism would explain the underlying physical causes of the behavior.
grosswait
I read the whole article and I agree that the first sentence was a very poor choice as an introduction to the rest of the content.
However, it is an interesting article if you ignore that bit of bluster. The amount of overlap and traits commonly associated with ADHD and autism.
lazide
Eh, newtons theory of universal gravitation is still a theory, even if he had no access to particle physics, and even if later the Theory of General Relativity (among others) largely supplanted it. It’s also still useful (and used!) in most real life engineering situations. It’s rare where time dilation applies in say civil engineering.
That folks with Autism and ADHD may have large portions of their symptoms occur because they focus too much on some specific things, to the detriment of others - like emotional well being/regulation - can still be falsifiable (better than most psychiatric theories for sure!) and useful clinically.
Personally, it lines up with what I’ve seen and experienced.
That there is another (perhaps chemical, or brain structure) theory too doesn’t necessarily change that!
EPWN3D
They're Newton's laws of universal gravitation, not a theory. The difference matters because Newton's laws describe what happens in nature without positing a mechanism. Einstein provided the mechanism via general relativity, which is a theory.
nynx
I don’t think it’s falsifiable until there are autism diagnostics that aren’t behavioral. Right now, they’re 100% behavioral, which that any theory that tries to cluster autism symptoms is hopelessly tainted by a recursive definition -> diagnosis -> definition cycle.
lazide
If intervention x results in y behavior changing in z% of the population (or not), would that count? I think it would.
Just because it doesn’t describe 100% of situations or work 100% of the time doesn’t mean it couldn’t be shown to produce useful predictions and work or not.
And yes, that isn’t particle physics type falsifiable, but it is medical treatment falsifiable. Kinda. Newtons theory never predicted Mercury’s behavior, but was still super useful eh?
aeonik
Definitely resonates with my experience.
Not diagnosed autistic, but ADHD.
starlight1980
I understand thatnyou tjink ADHD is a type of autism ?
wonger_
Not quite, but I think there's a lot of overlap between ADHD and autism, and that the labels are becoming increasingly blurry.
The final paragraph touched on it:
> It is, I think, too early to say with any confidence that autism and ADHD (or KCS) share a common root in monotropism, but the overlapping traits of the people receiving each label clearly demand some kind of explanation, and preliminary results do suggest that each is strongly correlated with monotropism – especially in combination.
Also, a definition of monotropism from their homepage (not my writing):
> I believe that the best way to understand autistic minds is in terms of a thinking style which tends to concentrate resources in a few interests and concerns at any time, rather than distributing them widely. This style of processing, monotropism, explains many features of autistic experience that may initially seem puzzling, and shows how they are connected.
theshackleford
Diagnosed with both (as a child, then again as an adult after ignoring said diagnosis for a long time) I’ve been continually told there is a close link between the two, in that it’s not uncommon if you have one, to be diagnosed with the other.
I’ll say I’ve found “treatments” from both schools helpful. Even though I resisted stuff on the autism side for a long time because I felt “insulted” by it and was convinced it was a diagnosis made in error.
I was diagnosed with ADD as a kid (before it was ADHD). People always describe the disorder as "lack of focus" but that's a really poor description for what I have.
I would say I have "hyper focus", to the point where if I'm working on something interesting, I will lose track of time and am unable to redirect my attention to anything else.
This makes me incredibly "spacey" as often my mind is still fixated on the task even long after I've stopped working on it. It also makes it very hard for me to accomplish any task I don't think are interesting...
And often a new idea will strike me like an epiphany that immediately takes the top spot of my attention.
The result is I have hundreds of half finished projects in flight across countless areas of interest.