I have tinnitus. I don't recommend it
121 comments
·May 21, 2025plaidfuji
sheepscreek
I’ve had it since I was a kid. One day I just noticed how strange it was that silence sounded like this. I was maybe 6 or 7? Eventually just got used to experiencing silence like this. However, I usually only become aware of it when I’m alone - more so indoors at night time.
no_time
But that isn’t tinnitus right? I noticed mine right around the same time and I call it the “aether noise”.
To me, regular tinnitus (which I also had for a few days after concerts) could be matched and recreated with a tone generator, and is much more “in your face” despite being the same volume by the end of my ears healing.
Aether noise on the other hand sounds multi tone, not a buzz or a hum. I have not yet managed to recreate it. I can hear it all the time if I can focus on it, but it only calls attention to itself in dead silence.
Do you have visual snow by chance too?
bvrmn
Thank you for recommendation. My tinnitus become quite severe now. For past three years it's almost impossible to sleep after waking up in the middle of the night. Overwhelming ringing is hard to ignore.
sepositus
I've recently developed tinnitus within the last few months, so I'm still early in my researching. However, I've found a lot of people that discount this approach and swear it only makes things worse. That's why I've been hesitant to try it.
Do you think a lot of it has to do with having the right mindset?
plaidfuji
It honestly may depend on how bad it is and how you react to it. For me, it was causing almost a constant panic-level reaction for weeks. I couldn’t sleep without heavy drugs, and I would wake up sweating and on edge. Just non-stop. I took a fair bit of time off work because of how hard it was to focus. So suffice to say I was willing to try anything.. and the meditation aspect was necessary for me beyond just reducing tinnitus. But I can’t see how it would make things worse, at least not in a permanent way.
emeril
I had bad tinnitus years ago that thankfully eventually largely went away
That said, always having some white noise or music going helped a lot
anonzzzies
I have it from being a death metal singer/guitarist 30 years ago, but it gets much worse when tired or higher blood pressure (handy though ; most people don't have an actual audible alarm for that). It's indeed not recommended, it is, however very clever how the brain mostly filters it out unless I actively think about it.
I am in my 50s and the most notable 'side effect' is that I must avoid conference calls; it seems unconsciously I got good at reading lips in person, even in groups, but video calls and especially audio calls are just too hard. I tell people now I'm handicapped, which is indeed true I guess; we either meet in person or they will have to write it down. Captions sometimes work, but we work with people from around the world and some English accents just generate mostly random words as captions. Not sure why a discussion about a payment api is mostly about rain, goats, [laughter], [music] and such...
rzmnr
[dead]
jsphweid
Took 1-2 years before I went a single day without thinking about tinnitus after I gave it to myself playing drums. I was so happy to be smashing those punk drums in the first rehearsal of this band. I remember exclaiming afterwards to one of my bandmates, "Wow my ears are ringing! That was awesome!" He said, "Ya, mine have been ringing for 30 years." My heart immediately sank knowing what I had just done.
I spent a lot of days/months totally devastated about it. I remember reading this story about some woman in a scandinavian country who chose medical-assisted suicide because hers was so bad. I thought that was going to be my story. I thought it was inevitable.
But I met a lot of people who lived completely normal lives and described their tinnitus as so much worse than mine. I eventually got used to it. I wouldn't say the actual ringing is better or worse than it was. I have no idea how to measure it anyways. But life has gotten so much better. And I almost never think about it any more -- maybe once every few weeks I'll have the thought, "Oh ya, I have ringing in my ears" and a few seconds later I forget about it again. I think it gets better for most people, thankfully.
But it'd be cool to hear complete silence again.
mlinhares
When I'm very focused I can be in complete silence, but these moments are very few, once I notice the silence the ringing comes back again.
Mostly I'm at a point i don't hear it at all unless I get very distracted or see anything that mentions it. Like right now reading this post and the comments LOL.
jay_kyburz
> I remember reading this story about some woman in a scandinavian country who chose medical-assisted suicide because hers was so bad.
I'm surprised there is not some method to surgically disconnect the brain from the ear.
0hijinks
Tinnitus is sometimes neurological, seemingly caused by the brain compensating for a loss of sensation. I can imagine a horror story in which this just makes it a thousand times worse, on top of permanently losing all hearing.
Now, being able to use a hot-swappable audio sensor instead of an ear made of tissue would be pretty dope.
Biganon
Louder than you think, Dad! Louder than you think!
proceeds to rip off ears
anotherevan
The hypersensitivity to noise is also known as hyperacusis[1] which is defined as, “an abnormal sound sensitivity or decreased sound tolerance, with a heightened sense of volume and physical discomfort from many everyday sounds that other people can comfortably tolerate.”
hyencomper
There was an earlier thread on tinnitus https://news.ycombinator.com/item?id=21572827 where people had some techniques for relief. Maybe this could be useful.
mickelsen
Several! In this one I shared what I did to deal with my case: https://news.ycombinator.com/item?id=33905368
For those with unilateral tinnitus that seems influenced by neck stretches or TMJ issues, try sleeping on your back or on the opposite side to avoid pressure on the affected ear.
Also, consider getting an MRI to check for possible causes; in my case, a vascular loop was found contacting the vestibulocochlear nerve inside the internal auditory canal.
While I consider my case largely managed, it still flares up a few times per month, usually triggered by irritation or inflammation (allergens, getting sick, poor neck posture, loud music for hours)
acjohnson55
I get a weird transient tinnitus where my hearing drops out in one ear or the other for about 15 seconds, and is replace by a tone, which slowly fades as my hearing comes back. It sometimes happens multiple times per day, and sometimes not for weeks at a time. I've seen a couple specialists about it, but no known cause.
I also notice a low-level tinnitus when I'm in very quiet places. I keep white noise machines around to cover it.
jama_
I have permanent tinnitus and have this too, though it very rarely happens on its own. When it happens, for me, this sound is usually a signal to immediately change my posture when sitting in a chair.
When I reach flow, I tend to not notice until later that I'd now be sitting cross-legged, or that I've tucked one leg under myself.
That pressure tends to trigger the sound you describe after a while. I imagine because of bad blood circulation, though I have no idea why it's that sound signalling that for me.
D13Fd
I have this. It’s pretty uncommon for me but happens every once in a while. I have heard it’s no big deal. My imagined explanation is that it is a muscle that spasms and temporarily blocks sound to the ear, but actually I have no idea.
packetlost
I have this too. My theory is the random "drops" are caused by the inner ear hairs attuned to that frequency get disturbed by something (like a shift in fluid) and overloading their respective nerves, similar to the afterimages that come from staring at a bright light.
The low level tinitus in a quiet room seems pretty normal to me, it's your brain looking for really quiet noises that are at the limit of what your ears can pick up. Or something, I'm no expert on it.
labadal
I feel terrible because I never did anything wrong. I never went to a concert. I never worked around loud things for prolonged periods. I never listened to music too loud. I have tinnitus. It seems to go up in intensity when my TMD acts up, but it never goes completely away. Mine isn't nearly debilitating, but I worry that it's going to get worse with time.
DontchaKnowit
I have had tinnitus for as long as I have been forming memories. As a child I called it "the sound of silence" and thought everyone heard it.
Never bothered me much. Its much worse now at times. Still doesnt bother me much
EvanAnderson
I wonder about a genetic component. I've had the "sound of silence" for as long as I can remember. I don't remember how old she was, exactly, but my daughter confirmed she was experiencing something similar at a pretty young age (under 5 y/o). We were always very careful with her hearing (to the point that we had very small earmuffs we'd have her wear in potentially loud situations), so I don't think it's the result of physical damage.
I'm sitting alone in a quiet room typing this and I've got a cacophony of >12kHz whine going in both ears. The left is slightly louder and lower than the right. It's not debilitating but it would be really neat to hear actual silence once in awhile.
I played w/ doing hearing range tests on myself and my friends using an old NEC V20-based laptop during my high school days (mid-90s). I wrote a little BASIC program that played sounds of increasing frequency and asked you to report if you could hear the sound. Sometimes it indicates it's playing a sound when it isn't. By playing (or not playing) sounds repeatedly I would build up a "score" for the user's high frequency hearing response.
I have notes showing I could hear between 16 and 17 kHz back then. Today I struggle to hear more than 12 kHz. Interestingly, my tinnitus presents frequencies high than I can actually hear now.
philiplu
I've had tinnitus since my teen years, half a century ago. At least, what I normally hear is, I assume, tinnitus, but it comes in two forms. There's a constant sort-of grey noise, not too loud (definitely softer than people talking in the same room), which wavers in amplitude over a sub-second period. The more annoying form is a pretty pure sine wave, much louder, which thankfully is more infrequent. Not really sure if that quieter form is something everyone gets, or an actual tinnitus form. Anyway, after 50+ years, it's not a big deal to me.
neom
Same for me, is it weird I'd go so far as to say... I like mine? I like the name "the sound of silence" for it - I kinda feel like I use it as a "plane" to think on top of somehow or something. For me it kinda...whirrs up almost, till I'm fully enveloped by my thoughts and imagination, at that point the tinnitus is gone and I'm in unbridled thinking mode,I quite like the whole experience personally. I'm scared it will get debilitating like others have described, but it's never bothered me.
lbourdages
I'm in the same boat for the most part. Always had tinnitus, for as long as I can remember. Doesn't bother me at all.
However, for the past 3 or 4 years, during spring, I get much worse tinnitus in my right ear for a couple weeks. It appears to be caused by some kind of blockage in my inner ear due to the inevitable viruses we catch during the winter. It's louder and a lower pitch (around 3 kHz, unlike my 10+ kHz normal one), and even though it's not the first time this happens by now, it's still extremely annoying. It's harder to just ignore, and my mind immediately starts thinking "what if this lasts forever?"
So I can imagine that for those who develop tinnitus at adulthood, it can cause a lot more distress, because they lived the "before".
toast0
I had some nasty eustacian tube blockage this winter and some tinnitus during the worst of it.
You might try alergy meds (pills or nasal inhalers) to try to clear that up. I wouldn't expect it to do anything for your chronic tinnitus though.
mackeye
lol, i distinctly remember calling mine "the sound of life" when i was younger. the metal shows didnt help it too much but its how it goes
blackguardx
I have tinnitus from an inner ear injury from snorkeling/free diving. Tinnitus can be caused by clenching your jaw or otherwise stimulating your jaw muscles. My ENT told me the nerves for the muscles are extremely close to the nerves for hearing. One thing I try when my tinnitus acts up is making sure to keep my jaw relaxed.
le-mark
Most veterans have it, I sure do although relatively mild. Besides being issued defective ear plugs, the CVC helmets we used were garbage at protecting your ears.
https://amp.cnn.com/cnn/2023/08/29/business/3m-settlement-mi...
MarkMarine
I used double protection my entire time in as a Huey Crew Chief and my hearing is smoked. It’s ringing hard right now as I type this, the people closest to me can’t seem to understand because it’s invisible. Sometimes I wish I couldn’t hear at all so it was obvious
deepsun
In some ex-soviet countries college students may go to introductory military training, and they never even tell students that they need earplugs when giving them an AK to shoot at a shooting range.
th3o6a1d
I have tinnitus from going to loud concerts. I want to evangelize the importance of wearing ear plugs. It’s just not worth having hearing damage.
atum47
My dad also has it. Tinnitus is one of the topics on HN that I always click to see if there was any progress. That and Alzheimer.
jorgesborges
I’ve played drums and loud music for a long time. When I pay close enough attention there’s this persistent, aggravating noise — which I sometimes call “silence”, and other times call “tinnitus”.
technothrasher
> which I sometimes call “silence”
I've had mild tinnitus as long as I can remember; my earliest memory of it must have been when I was about four years old. I suspect I've had it my entire life. When I was a child, I thought it was just something normal that everybody had. When I heard the Simon and Garfunkel song, "The Sound of Silence", I thought that was what they were talking about.
grg0
Are we talking about that thing you hear when in absolute silence in the dead of night? Is absolute silence even a thing?
technothrasher
I don't know what anybody else hears in absolute silence, but I hear a high pitched ringing. I can hear it any time I think about it. Like the other poster said though, my brain filters it out typically when other noise is around and I'm not paying attention to it.
RHSeeger
I have constant tinnitus and sometimes it just "stops" for a bit (like on the order of a minute or two). When it does, the lack of a background noise is just.. unnerving. It's like something is missing.
mattmaroon
Think you mean plugging, not plucking, your ears, unless sirens make you remove hair, in which case they did you a favor.
I got some nice ear plugs designed for concerts (Loop) because I go to a concert and I already have mild tinnitus and don't want it to get worse.
I do not know why concerts have to be SO LOUD. Loud, sure. Permanent ear damage loud, why? It should tell you something that the guys on stage wear ear plugs.
That's a really good point about hearing damage vs eye damage, the only thing I can think of is it's a lot harder to measure and people don't care as much. It would be really hard to prove you had hearing loss in a court of law, let alone that it came from one specific event, and you'd have a much easier time proving that a high powered laser blinded several people, perhaps. And nearly 100% of people would choose "deaf" if they were forced to pick between that and blind.
teruakohatu
> I do not know why concerts have to be SO LOUD. Loud, sure. Permanent ear damage loud, why
I have often wondered this. So it’s non-deafening loud at the back? I was at a concert recently that was way too loud. A sound guy came to check and stood in front of the speakers. I thought finally it’s going to be turned down … nope … clearly his hearing had already gone which would explain why it was so loud.
I think my hearing has been damaged in the past and so I now always have either AirPods at the very least or earplugs on hand. If anything loud, like heavy construction next to a bus stop, is happening I put them in. I can’t undo the past but I can prevent future damage.
jay_kyburz
I went to a metal concert for the first time in err. 25-30 years and I don't remember them being so loud. It was physically painful.
I also had to go have a nap in the car waiting for the main act to come on.
presentation
Young people like intense experiences, blasting your ears out is fun when you're 18-24.
I “got over” mine after many months of “tinnitus meditation” (there’s a short book on this written by a guy who has some crazy disease that causes extra-bad tinnitus). Basically, you meditate by purposefully focusing on your tinnitus. It starts to flip your brain’s response from one of fear to one of relaxation. Even within the first session, you’ll find that when you try to focus on the noise for as long as you can (use a timer and start with 5 mins), you eventually get distracted and think about something else, even if just for a moment. Then you realize that your brain isn’t “forced” to notice it - and the more you practice this, the better you’ll get at noticing it and gently pivoting your attention back to.. the rest of the world. The noise never goes away, your ability to ignore it just improves over time.
The book is a quick read and helpful: https://a.co/d/ckOzbSq
I no longer meditate as often, but when I do, it’s actually still quite effective. I now see it more as a “retreat” of sorts - I can just kind of dissociate and let the ringing take over. Reading this article brought it back, incidentally.. but I’m ok with it. Once you fully surrender to the noise, you can start to let go of it. It’s the mental resistance that makes it hard to deal with.